Physical stamina will vary for each child with congenital (present at
birth) heart disease. Children with heart defects that cause symptoms,
such as shortness of breath, fast heart rate, or sweating, may have less
energy and endurance. Children with cyanotic congenital heart defects also
have less stamina because they have lower levels of oxygen in the
bloodstream to begin with, and can deplete their oxygen levels even faster
with play or exercise.
Many children with congenital heart disease can play and participate in
activities with friends, but may tire faster and will naturally stop when
they are tired. For others, it may be necessary to actually place limits
on physical activity. Some children can play sports and participate in
physical education in school, but cannot participate in competitive or
contact sports. Always consult your child's physician as to what type of
activities are appropriate for your child. Once you know how active your
child can be, allow him/her participate in appropriate activities to
foster muscle development, coordination, and emotional relationships with
friends and siblings.
If physical activity must be limited in a school-aged child, your
child's physician or nurse can write a letter to help teachers understand
the activities your child can and cannot participate in. Many teachers can
plan recreational activities creatively so that your child feels included
and does not feel different because he/she cannot participate in all
sports activities.
Physical therapists can also provide suggestions for exercises and
other activities that may be done at home to help improve your child's
muscle strength and coordination, as well as help him/her achieve
developmental milestones, such as sitting, crawling, pulling up to stand,
and walking. Physical therapy may be carried out in sessions at the
hospital, as well as by parents at home.